Why? 
                   hardofhearingchildren.com by PAM Candlish MLS
"What did you say?" "Eh?" "WHAT did you say?" "MM?" "WHAT DID YOU SAY?" oh "PARDON ME!"

Why I Wrote the Book?

 

We started out as Reid's parents with many years of parenting and very little real information about hearing problems and children. By the time Reid was starting kindergarten, I felt that I had learned so much, and suggested adopting another child with hearing problems. This was voted down by all the family. During Reid's early years, I wrote a column for VOICE for Hearing Impaired Children which always had an appropriate cartoon. I felt we all needed to laugh. I felt so isolated, and reached out to see if other parents had similar problems by writing. Other parents would comment from time to time, which meant my columns were being read.  

Research was about DEAF Children

I wanted a book which had easy to read, easily accessible information. It was meant to be "Everything you always wanted to know about Hearing Problems but were afraid to ask." I wrote the book in longhand, on the days Reid went to school.

Daniel Ling

Daniel Ling sees the book in print,dedicated to him.Utah 96 

Daniel Ling sees the book "Not Deaf Enough" which is dedicated to him for the first time in Utah with PAM, 1996

 I showed the manuscript to  Dr. Daniel Ling who said it must be typed on a computer. My typewriter had died, and we did not have a computer, but were saving to buy one. A new computer (about a 21.5) went to live in the attic where I nearly froze while typing and typing and typing. Eventually, I got to the end, and printed the whole thing. It was a big book. I brought the manuscript, now called "Ear, Hear, Heart" to Dr. Daniel Ling at the University of Western Ontario. Dr. Ling found time and read through and recommended the book be published by VOICE for Hearing-Impaired Children. Judy Simser spent a summer on the dock with the manuscript and recommended that VOICE publish the book. VOICE  declined. Dr. Ling suggested A.G.Bell Association for the Deaf.  

Lucy Cuzon Du Rest Undertakes Editing of Ear Hear Heart

Lucy Cuzon Du Rest, the editor of Not Deaf Enough on the steps of the Volta Bureau, the home of A.G.Bell Association for the Deaf in Washington DC

I was honored to have the same editor as Daniel Ling. Lucy Cuzon Du Rest told me she always wanted to do a book for the parents, and my book was the book, and probably the last book she would edit. Lucy worked on the manuscript through many editings. The peer review and criticism process is enough to drive any sane person up the wall, especially in this field where there are so many conflicting points of view. Lucy is such a charming and fascinating person that I was happy to hear from her. 

When I first wrote the book, before reading it my sister ask me if there were footnotes because she did not like the distraction of footnotes. I agree with her, and constructed the book with in-text reference for single references. Ideas which could be found in more than one source were considered to be in the public domain, and were not footnoted. Lucy and I argued about the footnotes. She said, "The audiologists will look at the book, and if they don't see footnotes they won't read it." I said, "If the parents look at the book and see footnotes, they won't read it." Our compromise was to footnote the chapters on audiology, 

Don McGee, the word by word editor, PAM and Liz Quigley of A.G.Bell. We all worked hard on Not Deaf Enough                      Liz Quigley, one of the determined women in the world who make a difference.

Liz Quigley, PAM and Don McGee in Utah. I could crop the picture, but looking at the scenery is good for you!

 using Martin's Introduction to Audiology. When Don McGee became the word by word editor, I was able to prove to him that I had two references available for every page in the book, in two Rubbermaid containers in the attic! Another anonymous editor I called Mr.Picky who earned the name. Mr. Picky always had something to say, and thought I was an overprotective mother.  

PAM, Ross and lucy eaditing on Potomac!

PAM, Ross and Lucy discuss the book while eating soft-shelled crab, and the world's freshest salad.  

Lucy Cuzon du Rest is an artist who does fascinating collages. Lucy did not like my cartoons and asked for pictures instead.  She pulled the pictures for the cover, and the book from my hundreds of pictures in our family photo albums and Reid's Experience Book, plus some taken by friends for their better lenses. My daughter Barbara took the picture of me on the back cover. All the pictures were in color, taken to black and white to keep printing costs down. Lucy did a wonderful job with the pictures.  Even though there is a ton of terrific information, the pictures welcome you warmly into our family with a child who uses hearing aids.  That is  Lucy's magic.  

The Best Part About Writing a Book is Writing your References for Permission

Some famous people wrote me back themselves, Sheila Kitzinger and Frederick Martin and Danielle Steel wrote nice notes of encouragement.  

 

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Our MPP Ted Arnott sent an official letter of congratulations from the province.

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The Writers of ER respond to my suggestion that Pete should have a copy of my book to help him through the rough times. 

Like many or most of us, I watched ER to see the story of Reese unfold. I felt it was close to the reality which we parents of hard of hearing children face on a daily basis. I howled with laughter when Reese put the hearing aids in the toilet. I wrote to the writers of ER to suggest that Pete should have a copy of my book to answer his questions about Reese. 

 

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